Originally Posted by intrepidreamer

So after 5 long agonizing years of wondering what is wrong with my left neck, shoulder and arm..after mutliple nerve conduction tests, MRI's, injections, and two surgeries...I finally get to see Dr. Thompson. He says I definitely have neurogenic TOS. In a way what a relief to finally know what is wrong with me. I received two muscle blocks while at Barnes Jewish. They didn't really make any difference. I know that a negative result from the blocks is not rule out TOS, but nontheless a bit disappointing. He has prescribed me physical therapy and I'm currently looking for one in my area (Little Rock) who can work with me. Does anyone have experience with a physical therapist in this area who has worked with TOS patients? I have had this for five years and honestly I'm not convinced that the PT will help much. Do any of you know what percentage of people improve from PT? I know the only other option is surgery but I'm afraid of that too (perhaps because I'm a surgical nurse and I take care of patients having thoracic surgeries, but not for TOS). Can advice or suggestions are appreciated. Thanks!