[QUOTE=Jewels43;1018585]Hi Georgia, it's a stormy night here in the Pacific Northwest.
My toes are numb, well I can feel them a little. This started over 2 years ago. Then the backs of my heels started burning badly. The Neuro sent me to a Podiatrist for my heels. Said that wasn't Neuropathy! I went and got all kinds of diagnoses..from bursitis, Plantar Fasciitis, Achilles Tendon (both feet mind you) Etc. I did stretching exercises and icing 3x a day for 6 weeks.. Nothing. Heels still felt the same. Spent hundreds of bucks on orthotics since I was also told I have pronation.
I decided to go for yet another opinion. I have now gone to a Sports medicine Dr. He took tons of Xrays on my feet and ankles. He thinks it's my Cutaneous nerves. I go back in a week or so for reevaluation. We'll see if he can help me. I'm so frustrated and in so much pain.
In the hot summer days if a breeze comes in the house my calves freeze. I sit with 3 blankets on them and it's almost 80 degrees in here. No a/c here.
I have had the nerve conductive tests plus a EMG. Both were negative which I expected. My Neuro just said I had Small Fiber Neuropathy then. She didn't say a skin biopsy was necessary.
I am so sensitive to drugs I've been unable to take anything for it. I've had RLS since childhood and since 1999 I've been on 1200mg Gabapentin. They've tried upping it but each time I get confused and light headed.
I'm at a loss to what I can do.
Hi Jewels, Georgia
Its a cool clear night here in the Southeast. Sorry to hear you were diagnosed with Small fiber Neuropathy. I was diagnosed with SFN back in August of 2012, by skin biopsy. I first went to a Neurologist with burning under my feet and tingling in my calves 3/2011. It has been a very painful trip. I had a "comprehensive" blood work-up according to 6 diff Neurologist, 2 Rheumatologist. I even tried two Neuromuscular Neuros in NYC. No one can find a cause. So mine is "Idiopathic"
. So hard for me to accept that these Doctors (Specialist) can not find a cause for this horrible pain. I will probably die trying. Mine started out of the blue, with burning under my feet and pins & needles in my calves. It has progressed to my hands, fingers, arms, torso (Frnt & back) and face (Lips). I have it widespread. My symptoms are pins & needles, tingling, horrible buzzing, burning, stinging burning, electric -like pain, stabs , jabs, bee-sting,bites, I get sensitivity in my hands that comes and goes. The list goes on..I have developed tinnitus, a horrible loud ringing type feeling in my ears (&head), I feel it most when the buzzing is strong and moving from my legs to my arms. (I know it sounds crazy).
I feel like there is electricity flowing around inside me.
I never had tinnitus before. I have all these symptoms but I do not and never had any numbness or any autonomic involvement, except when I start feeling the burning and tingling, sometimes I get a warm feeling rushing up to my face and feel like I going to sweat , even when its cool in the house. I am on 300 mgs of Lyrica, for pain which dosent do much, my Neuro dosent want to increase the dosage because of SE and 10 mgs of Amitriptyline , the Ami just helps me to sleep a little. And Lidoderm (Lidocaine) patches for my feet as needed.. It scares me when I think about where this Neuropathy is going how bad its going to get as it progresses. I am at my wits end, I am crying as I write this. I feel alone, no one can understand how I feel unless they feel it too. they can not see my pain. I have become home bound and depressed. Do either of you have any of these symptoms, esc the buzzing, its such a horrible feeling. Then of course there's the stinging & burning in my feet and toes and now fingers. ughhh. .What are you taking for your pain? Sorry this doesn't answer any of your questions, but I saw your posts for SFN and had to write. Thank you for reading and responding..
Marie