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Old 10-02-2013, 10:57 AM
StephC StephC is offline
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Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
StephC StephC is offline
Member
 
Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
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Quote:
Originally Posted by bny806 View Post
How many of yall have done repeat loading doses of IVIG after a while? It’s been 2 years since I had my loading dose and I go every 3 weeks now.. should probably be sooner, but it’s hard to do it every 2 weeks.. In the beginning IVIG made a HUGE difference, it was amazing, and now it helps, but not like it used to – would a loading dose help “boost” it all? Thanks and I Hoep everyone is doing well!!
I get loading dose (2g) every 3 weeks since May...also take prednisone and cellcept but ivig at this dose is only thing that has provided any real or at least notable improvement. I think i could use more often but believe it is considered too risky to do any more frequently

Note i get octagam 5% (since dec 2012) takes 9 hours each of 2 days every 3 weeks and have not had any significant side effects.
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