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Old 10-03-2013, 03:46 PM
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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I know it is confusing that CMT is under the MDA family of diseases, although it is an atrophy not dystrophy of the muscles, but I would be happy for any treatment they develop. I don't really expect anything to change my life, but with at least one of my sons definitely affected and another showing symptoms I would love it if theirs could be arrested. People are being discouraged from having children by genetic counselors which is irrational since so many cases are late or mild onset.
We have CMT type 2, did not test for the subtype if any.
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"Thanks for this!" says:
mrsD (10-03-2013)