Junior Member
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Join Date: Aug 2012
Posts: 88
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Junior Member
Join Date: Aug 2012
Posts: 88
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Ditto what TOSmother said. From what I have experienced and seen this is a very difficult "disease". I am convinced catching it early and avoiding misdiagnosis leading to other surgeries are keys. I flunked both of those but still battling and could be worse I guess.
There is a 19 year old from my city who had this surgery with same doctor. He is 6 - 8 months post-op and struggling with severe pain and fluid building up in his lungs. He is living on hydrocodone and I feel so bad for him at such a young age.
I do think Dr. P is one of the best but this disease is so complex and tricky. I would guess all of the "experts" have patients who have had very negative outcomes. Everyone please keep sharing and encouraging each other. Keeping a positive attitude is crucial although I admittedly have been inconsistent in that regard as well.
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