Quote:
Originally Posted by flora99
Hi im a new member.Im Flora99.i live on the west coast of scotland.
I have RSD since 2002 ---it developed from tennis elbow and tendonitous.
Are there any members who live in scotland with RSD?
I dont know of any in our area at all.
It would be good for my mental wellbeing to talk to others.if i can help others too that would be good.
Please post me if you want support and want to talk to me.
I have a lot of pressure from my GP to have investigations on my stomach and throat.i dont know if i should go ahead with the sedation and endoscopy as my pain levels are low and quality of life is so good.i dont want to risk spred of my rsd again.This has happened before when ive had a canula in my good arm.
I did have a canula in my foot with no flare up immediately after but i had no symptoms there then ,now i have painfully cold knees and feet!
I take a low dose amitriptilyn and am trying to lower it as side effects are unbearable,stomach erosion ,and blurred vision etc!!
Should i risk a sedation and blood being taken?if i get a flare up i will have to raise the amitriptilyn again.
They are willing to put a canula in my foot again.
Last time was ok but i had no rsd in my feet then.
I know i cant face endoscopyband biopsey without sedation.
If you have useful comment or want me to support you ,please contact me
Big gentle hug to all out there fighting the firebreathing rsd dragon.
Love
Flora99
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Hi I live in Devon & have RSD in both legs, left arm from fingers to shoulder, left neck & I've started having back pain recently. I'm on 450mg pregabalin daily. I think the protocol is a good thing to give every doctor/nurse you see. I wish the UK was as good as the US for treating us, but we're sadly running well behind them. I hope you don't need invasive treatment, but if you do take care. Mandy x