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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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I saw my new neuro today. She did the most thorough exam I ever had. She seemed surprised I was walking without a mobility aid. We did discover that without my prism glasses, everything is double vision now.
I am down to 10 mg of pregnisone now. I am extremely fatigued at onlt 10 of pregnisone. My new neuro wanted to know why I was not on cellcept or imuran. That was my question. She upped my mestinon to 90 x 4 and the 180 at night. She is gathering all my records. She is also performing upper and lower Emg on my limbs.
I was sent back to the rheumy by the gastro for more autoimmune testing. They ordered a bunch more antibody test for lupus, Sjorjens and others. I told him he was right about the MG. He said he has another patient at his other office with probably MG and asked who diagnosed me.
I think the new neuro will treat more aggressively.
Finally,
kathie
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