Hi
I am so sorry your Mom and family are having to go through this. I am 57 and was diagnosed in May. I have been on Cellcept just over a month. So far I have had about a 50% improvement in my symptoms and am very happy I decided to take it.
My symptoms are mostly ocular(double vision & ptosis) but I do have neck, arm and leg weakness. I have also had swallowing and breathing issues too. My doctor started me on prednisone but severe osteoporosis has made it imperative I go on another medication.
I also was concerned about the list of side effect and adverse reactions. But, I have had to change so much in my life I decided it was worth a try to get in remission.
So far I have had some minor stomach upset and some pretty significant sweating with activity. My liver and kidneys are being monitored monthly with blood tests.
Good Luck with the decision about Cellcept. I did lots of reading online and other patient forums. So far, I am glad I decided to take it
Sandy