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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Rest and ice packs on the eyes also helps. I can vouch for the caffeine too. I prefer dark chocolate.
Mestinon only temporarily relieves symptoms and is not a cure. I have generalized MG and take 90 mg x 4 plus 180 at night. Mestinon only relieves about 25% of my symptoms on average. My eye symptoms still get worse at night. Have you tried prisms in your glasses? I got prisms in the spring and now my center vision is free from diplopia except on very bad days. I do not think that mestinon brings anyone back to their pre-MG self, but it does make life more manageable.
If your vision gets worse or you start experiencing generalized MG symptoms like extreme fatigue, muscle weakness and swallowing issues, see your neurologists. With generalized MG, they also treat with steroids and immunosuppressants. I am not sure if they use them with just ocular MG, you should ask your neuro.
Good luck,
kathie
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