Thread: Shunt Pains?
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Old 10-05-2013, 06:10 PM
MegAlfOCon MegAlfOCon is offline
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Join Date: Oct 2013
Posts: 16
10 yr Member
MegAlfOCon MegAlfOCon is offline
Junior Member
 
Join Date: Oct 2013
Posts: 16
10 yr Member
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Quote:
Originally Posted by xKayode View Post
So I've had this shunt since birth, 18 years. It's only been revised once when the tube for one broke. The pains been going on for pretty much all of those 18 years, and it really only hurts when I touch the part of my head where the shunt is located.

Why is that? Could someone explain?
I can't explain it but I had the same issue until I was about 18 and wound up having a revision right after graduating high school after we realized that the catheter had detached from the valve. They wound up leaving in my old catheter because I had grown up around it (previous revision had been at age 4) so it is still there. I mentioned all of that because I wonder if the shunt pain is connected to growth, i.e. as the body grows up around the shunt there is some pulling or something. In my case, it caused a detachment but that may not be your case.

Also, is there a way to get like the pain to stop?
no clue. I do get periodic pain around where my old catheter used to be down through my neck but it is pretty rare these days.

And my last question: What's the chance of getting a shunt removed and actually performing well in life?
I was told by several doctors that they would never remove it "just in case" I still need it. As I mentioned in a previous post, I question how often people truly grow out of being shunt dependent but if everything works correctly, there is no need to follow up so we may never know.
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