Nervous,

Yes, I have had IVIG...9 years for immune deficiency. Then suddenly I had a horrific reaction when we were upping dose for neuropathy. I got a severe case of aseptic meningitis. It is a fairly rare, but severe, complication possibility. I stopped infusions after that, until 5 months ago. My immune deficiency was so problematic that it was worth trying again even though my risk of the meningitis would increase (since I had it before). So far I've done ok, but the dose for immune def. is lower than that for neuropathy. The lower dose has not been helpful for the neuropathy...but my neuropathy (now know to be from Sjogren's) is not typically treatable, since it's from damage to the dorsal root and autonomic ganglia.

Insurance will always try to find a way out with this treatment due to it's cost. But I don't think you'll have a problem if you have a confirmed diagnosis.