Would also like to reiterate that the book project was very much shaped by Paula, who worked on it almost till the last, with great enthusiasm and insight, along with Bob (Bandido) of this forum, they were both a huge part of the project.

E-patient Dave of participatory medicine and TED talk fame brought Paula right into the centre of the congress when he showed a page she wrote, with her photo and her tagline, "Time is not Neutral for us......" highlighting the urgency for better treatments and a cure. It was a very moving moment.

I know many of you will have conversed here with Paula, she was a great connector of people, and I often see her posts when others look for information in our archives.

It was a great privilege to meet at last some of the people who are actually in the book and who are members of this forum.