Yes, i echo what Kevscar said. Go to RSDHope.org and they have awareness ribbons etc. and pamphlets. I have given ribbons to my Dr.'s and have given pamphlets to my SSDI Attorney. It's a great site for all kinds of articles.

This disease is rare so "walks" etc. are difficult to organize. Too bad being independantly wealthy does not come with this disease, I think folks like us could gather and go out and really make a difference.