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Old 10-09-2013, 07:06 AM
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jen7009 jen7009 is offline
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Join Date: Sep 2013
Location: Northwest Arkansas
Posts: 32
10 yr Member
jen7009 jen7009 is offline
Junior Member
jen7009's Avatar
 
Join Date: Sep 2013
Location: Northwest Arkansas
Posts: 32
10 yr Member
Confused Endless programming

I have to share my frustration and see if anyone has had a similar experience or has any words of wisdom (I know there are many words of wisdom here!). The good news is that I had my 2-week checkup and got my staples out Monday, and the incisions look great. Also on Monday, I got my first re-programming, which was sorely needed because the initial programming was only covering about 25% of my pain area. The programming took about 20 min and was wonderful--I got about 90% coverage, and the rep told me that we should be able to get 100% coverage by the time I "scar in" and the lead stops wiggling. My grandma drove me home, and since I got the ok to drive, I got in my car and drove the 1 1/2 miles to work. I turned off the SCS while I drove. I didn't twist or anything since I have a backup camera (never used it before this!) and there are only 4 turns between home and work, so it was a really easy drive, and I didn't feel any different when I got out of the car than when I got in. I went in to my office, sat down, turned on the SCS, and...the coverage was completely different! I tried a bunch of different chairs, laying down, walking, standing, and nothing made a difference.

I called my rep, she had me make some adjustments to my programs (didn't help), then turn off completely for 3 hours (didn't help). Then she set me up with an appointment yesterday with her colleague (my rep was in with an implant surgery yesterday). Fill-in rep was great, spent 1 1/2 hours with me, trying somewhere around 50 different programs (including what she called "traveling up the lead" where she turned on each bit in turn to see what area they covered--VERY strange feeling!). After that 1 1/2 hours, she got me to 90% coverage again, with less bleed-over into non-painful areas. I was extremely happy with 90% (even if I don't get 100% when this is all over, 90% was incredible relief) but worried that I'd lose it as quickly as I did on Monday. With trepidation, I got back to work, sat down, and...80% coverage. I'm ok with that; my regular rep said she would meet with me again next Monday (and each Monday if needed) to make tweaks based on how I continue to heal/scar in.

My question is, has anyone else had this experience? Did it get better?

Thanks so much!
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"Thanks for this!" says:
eva5667faliure (10-10-2013), Hannabananna (10-10-2013), Mark56 (10-10-2013), MessyMark (10-09-2013), Rrae (10-15-2013)