Hi bizzymum42
I too am a newbe to this forum, ocular Myasthenia and Mestinon. I have been on it for five weeks 30mg/3times a day for a week, then 60mg/3times a day. Like you, they only last 3 or 4 hours, so time the dosage to suit your lifestyle. I take the last one around 6 pm. Improvement started for me the same as you described. But hang on in...it does get better once your dosage is sorted to your needs. i read on this forum about caffine being a help and it is... so dark chocolate and coffee. Keep smiling.
Quote:
Originally Posted by bizzymum42
I'm looking for input.
I'm taking Mestinon Its been five days.
Wearing off - seems to wear off after 3-4 hours? Why would it say take at least 6 hours apart if it wears off after 3-4 hours?
How soon after your first dose do you notice it working? I think I noticed improvement within the first hour. All my symptoms improved.
Side effects - fatigue after about 2hrs of taking a pill. I've been thinking this is me not getting good coverage. Or is that my body getting used to the medication? After taking the next dose seems to make it better.
Sticking my neck out there again....
Love this group.
Thanks,
Jen
|