Thank you for your post Mike. I was diagnosed with SFSG in April 2011 by skin biopsy. Your descriptions of the associated discomforts and the how actions of daily life affect them are amazing! I too have implemented many of your suggestions over the years with similar results. My situation is complicated by my living in upstate New York where we seem to have constant wind from Lake Ontario and nasty winters. Facial pain is especially hard to manage in this environment. All of the first line medications for pain have either done absolutely nothing for me or had short term effectiveness. I am currently on no medication for pain and trying to just force my way through it. Fortunately I am retired and don't have to force my way through performing at a job. Wishing us some kind of better relief through research. (if much is being done for such a rare issue.) Wayne