Thread: CIDP long-term prognosis
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Old 10-10-2013, 06:27 PM
ChaucerFan ChaucerFan is offline
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Location: Eastern Pennsylvania
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ChaucerFan ChaucerFan is offline
Junior Member
 
Join Date: Jul 2013
Location: Eastern Pennsylvania
Posts: 80
10 yr Member
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Originally Posted by mafaun View Post
Hello, my mom has had CIDP for 6 years. She's no longer responsive to IVIg, rituxin, or prednisone. She feels that she will become quadriplegic shortly; she just keeps getting weaker. Where she lives, there are no neuromuscular specialists.

1. Does anyone know the long term prognosis of CIDP once treatments are no longer effective?

2. Has anyone tried any other combination of treatments that have been effective?

Any thoughts would be great. Thanks.
Hi, Mafaun. I'm just starting to investigate CIDP treatments because the specialist I consulted recently thinks that may be my form of PN. Has your mom tried "plasmapheresis (plasma exchange)"? It's one of the treatments listed on the CIDP web site of the National Institute of Neurological Disorders (a branch of the NIH). I think it was one of the treatments my doctor mentioned, though he doesn't want to do anything yet because the treatment is kind of "rigorous," and at present my symptoms aren't too bad (lucky me--at least, for now!).
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