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Member
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Join Date: Aug 2006
Location: CA
Posts: 101
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Member
Join Date: Aug 2006
Location: CA
Posts: 101
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HI Keggy,
Sorry I havent seen this.. No the boys havent been decompressed. Thier Chiari isnt that bad. They are only at 1. Their neurosurgeon monitors it yearly along with thier other brain cyst.
How are you doing?
Blessings,
Gina Marie
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GinaMarie - Basal Cell Carcinoma Nevus Syndrome (BCCNS) also known as Gorlin Syndrome, Multiple other stuff, Mother to 4 miracle boys.
Nathan - Adhd,
Caleb - Adhd,
Adam - BCCNS, Adhd, Chiari Malformation,PDD-NOS
Noah- BCCNS, Adhd, Chiari Malformation, Bronchial Stenosis, Asthma
Thank you Jesus!! He walks with us thru all of this because he will never leave us nor forsake us!! He is my BESTEST friend!!!
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