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Originally Posted by ginnie
Welcome to Neuro Talk. I know what being a worried mom is. Have you gone to see neurologists that specialize in RSD? Also their is a field of medicine called a Physiatrist. They try integrative medicine, and think somewhat outside the box. Mine, has pain as her first priority, then she evaluates all the rest. If you visit the RSD CRPS forum, you will hear many of the symptoms that people experience. I am not a professional, but there are some very smart people here on Neuro Talk. Mrs.D, and our moderators may be able to direct you too.
I really hope there is a resolution to your daughters illness. Keep posting, you will get more replies. Has any medication been prescribed for your daughter?
There are hospitals such as Mayo clinic, and most teaching hospitals, that can do a broader range of dx. Someone on this site may have more that may help. I will keep your family in my thoughts and prayers. ginnie   |
I have asked several DR's about RSD and they all look at me like I am crazy. and say im sure that isn't it. she has had MRI, MRA , CT of brain, blood test . We have been to the UW of Madison WI, Childrens Hospital in Chicago IL. Im just so lost as to what to do. She is on Neurotin 300mg 2x daily, and Vicodin every 4 hrs for pain. nothing really helps. We are waiting for more blood work that has been sent to the Mayo Clinic. she has to see a Gyno for cyst that where found on ovaries now. also a Cardio specialist to see if she has POTS syndrome. and a spine specialist for a node on her spine, That is what showed up on her last MRI.