Quote:
Originally Posted by ChaucerFan
Hi, Mafaun. I'm just starting to investigate CIDP treatments because the specialist I consulted recently thinks that may be my form of PN. Has your mom tried "plasmapheresis (plasma exchange)"? It's one of the treatments listed on the CIDP web site of the National Institute of Neurological Disorders (a branch of the NIH). I think it was one of the treatments my doctor mentioned, though he doesn't want to do anything yet because the treatment is kind of "rigorous," and at present my symptoms aren't too bad (lucky me--at least, for now!).
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Thanks for responding.
I think plex is the next option for her, although she is fairly weak. We're worried that if the plex does not work, we don't know what will happen to her. She's already had CIDP for 7 years. Will she become quadriplegic? Or are there other options out there?