Hi all.. I don't post much but read everything...
My husband has had RSD for almost 6 years now and will never walk again because of it. His right foot and slightly above the ankle is the affected area.
He is also on workers comp for RSD (what a friggin nightmare) but last year the courts ordered a dr. change and his current doctor sent him to RIC for their 4 week program (a comletely different part of RIC not the world renowned hospital but the pain management clinic on north michigan ave in downtown chicago) for a tapering off his opiods. They are making him come completely off all opiods and we aren't really sure what his doctor here in atlanta is going to do for pain (we see him next week) but anyways I am just extremely curious as to others opinions/experiences with the CPM program at RIC.
Workers comp backed out literally last day to fly me and my 5 and 8 year old up to see my husband and attend the family part of the program so i put them in the car and drove the 14 hours to get there so I could meet with the doctor and psychologist and ask what I needed to ask and I really would love to chat with someone else with RSD that has gone there to see what they thought.
It took us 5 years to get to the point of my husband being able to physically get up every day and be a half way normal family then the court orders this doctor change and within a year we are 10 steps backwards with his ability to do anything which is what we were most afraid of. He has tried every medication, nerve block, ketamine, SCS under the sun and nothing worked except this one opiod he has been on for quite a while now and now he is forced to taper completely off it and be in pain 24/7 and it is killing me to watch and make my child children endure this
Sorry I went off on a rant but had to get it off my chest back to the main point
Please let me know thoughts on RIC and if you went there who was your dr at RIC...I can give you my email if you prefer to talk that way or even my phone number! He has a recheck on 11/1 and I would love others insight before that appointment and before my lawyer insists I go back there with him (how he is going to be able to fly with no pain meds is a whole other issue we are trying to figure out so I have to be with him or he will never make it)
Thanks so much!