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Old 10-12-2013, 09:01 AM
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
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Hi. I'm so sorry you're going through this.

I am diagnosed with MG, and I've never had drooping eyelids. I'm not the only one here like that.

I tested negative for the antibodies (a blood test). That seems to be quite common. After that, my doctor lost interest in my case, and I asked him if he could recommend another doctor--a specialist in diagnosing neuromuscular diseases. He sent me to a doctor in Boston who diagnosed me with MG. Don't be afraid to ask. I think that a doctor who has nothing more to offer is often more than happy to send you to someone else. If you're near Boston, or would be willing to travel, the MG specialist there is David Weinberg (in Brighton, Massachusetts). He does a special kind of test, a stimulated SFEMG, that most neurologists don't do.

Abby
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"Thanks for this!" says:
bizzymum42 (10-16-2013)