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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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If you think you have MG, you should find a neuromuscular specialist at a large teaching hospital. MG is so rare that most local neurologist have never seen it. Make sure they test for the 3 ACH antibodies and the musk antibody. If they are negative ask for a single fiber EMG. Only about 85% of Mgers ever test positive for antibodies and that is often later as the disease progresses.
Where are you located? In Ireland? Perhaps someone in the group can recommend a doctor or MDA clinic in the area. Do not give up. It took me 2 years to get diagnosed but now I am finally getting treated.
Good Luck and let us know if you need any more guidance. The board is also very helpful in giving advice on managing the day to day symptoms.
kathie
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