Thanks for the replies.

The neuro mentioned endoscopic third ventriculostomy to me and I had hope for a short time that this was going to happen, after my full history was reviewed the neuro said no and this was due to the position of the cyst that caused the hydro when I was a baby.

Don't know about anyone else but I visualize sometimes just ripping it out myself when the pain is bad. I would never do this of course, but the image comes into my head when I'm so frustrated with it all.

Hopefully will see the neuro soon and get something done.

Darren