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Originally Posted by Anne4tos
Wow! That's a unique way to get TOS. I'd be interested to see more about a possible thyroid connection. With all of my imaging, 2 nodules, which were biopsy sized, were found on my thyroid. I also have a goiter and a larger hyoid area. The nodules are benign, but their location had me do some research on a possible connection, especially in relation to one of the nerves which run through the thyroid.
Good luck to all of you doing the Edgelow Protocol. I've done it for years and now blending in some different things I've learned from a CFMT. I think the biggest struggle with TOS patients is finding everything you need in one PT. Insurance companies don't understand this need as well  .
I'll be ecstatic if this thing can "burn itself out." |
Yes, it would definitely be nice if the pain burned out and went away. If only it worked that way, not sure why some doctors think it will. I had everything wrong with my thyroid as well. I haven't heard of it being connected to the thyroid. The reason I got TOS was most likely from the surgery. I have read that in some cases there is a hyper extension of the neck for the whole duration of the surgery. That in turn, will damage the nerves in the neck, strain the brachial plexus and cause this condition. But this pain as an outcome is unheard of which is why there is so much ignorance in the medical field about the onset like mine. I know a few people who have thyroid issues but refuse to get it removed because they have seen the pain i have gone through. I am sure it rarely happens, but i've seen videos on youtube about these kinds of surgeries and doctors seem to not care about tissue or how they handle it. It's gross for one but it also made me think about how not-so-careful they seem. It's never a sure thing that any surgery will go correctly. It's hard to gauge how a patient's body can handle the medicines and stuff.
I am glad that the Edgelow protocol helped. You are so right, insurance companies do not understand what it is like to have a condition like this. I have had to appeal to them so many times just to get things processed and to allow me to go to the doctors I wanted to. I think the most frustrating thing is not knowing anyone that could understand what I went through and not seeing doctors that believed there was something wrong. Being in pain like that and not knowing was the worst part. Because no one knows how to help, or what can help. It's only trial and error with anything doctors throw at you. Being able to see doctors understand this condition, sadly because they have it or their loved one has it, but they understood the most. I felt better about having the condition because I was validated and started on the path of relief.
I have read that whiplash can cause this kind of condition. The bad thing is I like going to amusement parks but i can only do one or two roller coasters every time I go, it flares up the pain.