Thank u both for your feedback.
Agreed - prednisone and dexamthasone are horrible, horrible meds. I def wish they hadn't raised my dose so high for so long.
I also initially saw a dr who primarily treated ALS and he was pretty useless.
Still hoping my face deswells. Wouldn't mind as much if the benefit of the steroids was more lasting. Grrrr.
Hope you are both feeling well.