My husband and our kids n my sister n her boy do so much for me. I'd be lost without them all. The fear has me most worried. I love being w our adopted grand babies even when the monsters act up, I feel needed with them. But I can't do as much for them anymore. The muscle cramps n spasms hurt enough in one hand/arm now they start in the other yuck yuck yuck and this lack of sleep is killing me! I know I'm not alone but I feel alone. I live in Maine and I no no one else with this dreadful disease I call crap!