Lakern's mom, where are you in IL? I ask because when I got my RSD, I was living in Michigan. I had an older neighbor who had a high school aged granddaughter with RSD in her legs from a tennis injury. This young girl was seeing specialists at one of the Universities in Chicago. This was ten years ago, but there were cutting edge doctors there that made huge differences in the pain, quality of life and mobility of Marge's granddaughter, even back then. It sounds like you already have Laken seeing a lot physicians. Unfortunately because RSD is not easy to diagnose, a lot of other things usually need to be ruled out first, which unfortunately takes time. It is the juvenile that stands a much greater possibility of remission with RSD, but is she seeing doctors who are familiar with RSD? That usually makes a big difference in treatment and diagnosis. There are lots of dos and don'ts to follow, the most important ones have been already mentioned above, but it is important that Laken not cease moving if possible, should this be RSD.

If you have not already found RSDS.org, Jim Broatch, the director, can help you find doctors and help in your area. Between that site and RSDhope.org are fantastic sites for information of all kinds. Actually both sites can give you personal help with finding resources if you email them. This site is the best one I have found for connecting with others with RSD, but there are FaceBook pages geared towards juveniles and teens that might be helpful for Laken, if she wants to connect with other kids going through the same thing.

I can't even imagine how difficult this must be for parents wit children suffering from this disease. It's pretty horrible for adults. I can not even imagine a child having to deal with the level of pain we go through, everyday. That has to be so difficult to come to terms with as a mother. I hope you have great success in getting a diagnosis and finding good doctors, physical therapists, etc.
My heart goes out to you both, soft hugs, Sylvia