hi Sue
I am picking up on this thread again. Since I last posted, I have been having those night episodes frequently.
I now have had visits with my neurologist. He is now arranging for me to be admitted as in patient on a special neuro unit in a hospital He said it will be 48 or 72 hours. They will do a video EEG monitoring test regarding seizures.
He is also booking for a spinal tap, and is testing for a few things. MS included.
My neuropathy is now so bad. I was on a steroid treatment with Prednisone for a few weeks, and it helped. That tells me there is a terrible inflamation on my whoke nervous system. Because those fine vibration like neuropathy pain I used to feel they got better. But now I am tapering the Prednisone over 4 weeks, for the last few days I felt very sick, ( as due to the Steroid was tapered)
I have to tell the doctor. I do beleave that my symptoms are from a systemic attack on my nervous system. I am very scared of those night episodes, I woke up and had one of those symptoms, as I woke up, I felt i urinated, very embarasing, but I thought it was like a seizure so I had to tell the doctor What do you think about this?
I thank you for the information to ask for a PET scan abd SPECT scan Can you explain theese?