I'm so glad to hear that I am not the only one. Suffered for years, but just got a final diagnosis today. I live in Atlanta and my dr. is suggesting 4 ( 1 a week) biofeedback sessions and then a botox injection. What do you think?
I've done the recto seal repair...lasted 1 year. I will say that I take Dr. Schultz's Formula one...2 at night. *edit* In most cases I am able to have a bowl movement because it softens the stool enough. If I don't take it....I could go weeks literally.
Would love to hear your input on my proposed treatment plan?????
So happy to find others like me.
Cheryl
Quote:
Originally Posted by Joshea2
RollerGirl,
Did you see Dr. Steven Wexner in Florida at the Cleveland Clinic?
I have the EXACT diagnosis as you. I have pelvic outlet obstruction/paradoxal contraction of puborectalis muscle/anismus...there are so many names. I've had every test imaginable including defacography and menometry, etc. I also had two botox injections into the puborectalis muscle, but neither worked. Currently I do not have any spontaneous BMs on my own, and I haven't for 4 years. I'm surviving by drinking a bottle of magnesium citrate once a week to clean out, but the laxative is becoming less effective because my body is getting used to it. Dr. Wexner told me that my only hope of avoiding a stoma/bag is to undergo intensive biofeedback/physical therapy every day in his clinic for 2 weeks to a month. Unfortunately I'm a single mom, I work a full time job, and I live outside of Chicago. I do see a physical therapist that does biofeedback here, but it's only once a week so it hasn't beed effective. I recently found out that the Mayo Clinic has an intensive 2 week outpatient program to treat this condition. I'm looking into it and I WILL do it. Right now I'm trying to find two weeks that I can head up there.
Like you, I have a history of weak pelvic floor, and delivering my daughter vaginally made it worse. Also, I'm a teacher and am unable to go to the bathroom when I need to, so over time I've trained my muscles to hold it in.
Jamie
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