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Old 10-16-2013, 10:39 PM
bizzymum42 bizzymum42 is offline
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Join Date: Jul 2013
Location: Oroville, CA
Posts: 17
10 yr Member
bizzymum42 bizzymum42 is offline
Junior Member
 
Join Date: Jul 2013
Location: Oroville, CA
Posts: 17
10 yr Member
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Quote:
Originally Posted by gr8ful View Post
You might want to call the clinic to see if they want to assess you first without mestinon in your system. I was so nervous about my 1st neuro appointment that I somehow confused the appointment and went a day later. I had to wait another 2 weeks.

It's no fun discovering you might have a rare disease like MG. Looking back, I worried more than I should have, but there was nothing that could have made me worry less. If you have MG it will unfold in its own way and you will be OK. If you can avoid getting tangled up with worry, do that. It sounds like you are lucky to be going to a quality place for treatment.
Thank for the tip about mestinon. I'll call ahead about that.
You understand my nervousness. I feel like I'm prepping for a job interview! I will be OK. It helps to remember that. This is HARD WORK.

Blessings!
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"Thanks for this!" says:
gr8ful (10-19-2013)