Jen,
Others have given you great advice. Both a journal and photos will be helpful. If you're able, take a supportive person with you to the appointment.

It took me 7 long, frustrating years for me to receive a diagnosis after my initial tests for MG were negative (antibody, EMG). A tensilon test and a positive response to mestinon sealed the diagnosis.

Please let us know the outcome of your appointment.

Cate