I want to say "Ifeel your pain" and not have it sound sarcastic. I think it's easy for our families to forget about our disease, but we may only get small moments when it does not torture us or at least nag at us.
Bless your heart I don't how you cope with the cold weather! I know that would greatly magnify the pain. You're an inspiration for pushing through, but you need to take care of yourself.
Hang in there and thanks for sharing!