I am still not doing well.

Exacerbation continues even though my prednisone dosage has been increased. I am taking good care of myself, have added B12 to my daily vitamin/supplement mix (in addition to regular meds), keeping stress down as much as possible, meditating. Trying to do the right things.

I have become a fluffy couch potato (again) - much to my dismay.
I am (relatively) stable if I do nothing. Nadda..... zilch.....

But almost any muscle-using activity grounds me. Weak and very easily become extremely fatigued.

This is VERY depressing to me because 1 1/2 months ago I was in (what I believe) near remission, albeit still on meds.

Something - the flu shot or shock to my arm because the shot was extremely painful - or whatever - something is causing my MG to kick my behind.

Perhaps the flu shot has truly triggered another autoimmune illness, as mentioned in the thread above. ?????

My neuro is following me closely - and is readily available to me. Have seen him twice since my trip to ER, and he always says to call him if needed. And I have, and will again, Monday, Oct. 28, if I continue to feel this poorly.

This past week has been rough. Arm strength is better, but overall MG weakness and general stamina has plummeted. Have had on/off slurred speech, occasional shortness of breath. But not really a crisis, at least not like the two I have had in previous years.

This coming Monday morning, I plan to call my neuro (again). Perhaps I need IVIG to pull me out of exacerbation. I had IVIG several years ago when I had two crises within a relatively short time (hospitalized). Neuro is very conservative when it comes to IVIG, is as insurance approval.

But I am just NOT coming rebounding from this exacerbation, this time, and I have had a few moderate-severe exacerbations over the years.

Hate to complain. But this "fall" from a semi-remission is a hard one. Physically and emotionally.

I know I will get better. But it seems, it will be later than sooner.

I will update again.