Jen,

I just want to send you a big ol'

Have been (close) to where you are right now.

The diagnosis of MG seems to be such a precarious "call" for so many physicians (and their confused and ill patients).

I have an amazing neuro-opthalmologist who was POSITIVE I had MG - even before I endured all of the elaborate diagnostic tests. Basically, he just took a good "look" at me, performed the VERY scientific "ice pack" experiment (it worked) and confirmed the diagnosis. And then sent me on to the team of neurologists...........

Which opened a big can of worms. It amazes me how one neuro can see symptoms or a person's reaction to meds one way, and another neuro sees them completely different.

Finally, the skeptical neuro sent me to an MG specialist (2 hrs. away) who performed SFEMG. Which was positive for MG.

HOWEVER, after the test, he (the specialist) told me he KNEW I had it from the moment I walked (shuffled at that point) into his office.......

Then he sent me to a colleague who had a practice near where I live. My current neuro is not considered an MG specialist, however, he has consulted with the "expert" who diagnosed me a few times, and I have much confidence in him.

MG is indeed, a merry-go-round.

Whether you are in the diagnostic stage, or finally have a diagnosis and are being treated, it can continue to have its ups and downs.

Hang in there.

Again to you.