Gosh yes. Every single day. Every time I don't want to force myself to do something, every time I ask someone to do something I used to do myself... Every time I admit that I feel crap, or show my pain.

Guilt is a strange beast. You can know its irrational, know that having this disease isn't your fault, know that you would do the same for your husband/children/family if it were the other way around.....but it doesn't change a thing. I still feel guilty, and I think I always will.

I have a mantra - to deal with this the best I can. Some days I can do more than others (it's never enough though!).

I don't know the answer, but I suspect it comes down to living with it, like every other aspect of this condition....

Bram.