Newly Joined
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Join Date: Oct 2013
Posts: 2
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Newly Joined
Join Date: Oct 2013
Posts: 2
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my 3 y/o son
left temporal lobe. very large ac that ruptured. he had craniotomy fenestration in july 2013. we just had a recheck and not much improvement since surgery altho he is feeling better.
the symptoms that got his diagnosis were severe headaches (mornings) with vomiting that got worse over a few weeks (from rupture until diagnosis & emergency surgery). but looking back i can now see the symptoms that he had that i never noticed because i thought i had a healthy unique child. so now im trying to learn all i can and understand what he experiences. he is still symptomatic. we are waiting to see if he will get a shunt at next recheck.
im his mother and i love him so much and it's scary. im glad to read about others who have this and can describe what they feel.
anyone with temporal lobe ac please i would like to communicate so i can understand my son
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