Oh my Gosh DJ you have no idea how much this post touched me! I'm constantly feeling guilty for something anyway even before the RSD. I'm caught in the generation when trying to be Super mom and wife was expected, to be everything to everyone all the time.
Now my kids are grown and I just had them over for dinner. It is quite a huge chore for me these days. They just don't understand there is no pattern with this disease! During dinner they roll their eyes about me not working. They just do not understand how much pain I'll be in for later doing the fine hand movements needed just to make dinner even if I can struggle through it at the time.
So there you go, I'm feeling guilty, it doesn't take much to tear me down.
How do we make people understand that just because we can force ourselves to do things at one moment doesn't mean we will even walk or hold on to something later, or cry in the night with pain.