Member
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Join Date: Jan 2013
Location: Florida
Posts: 314
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Member
Join Date: Jan 2013
Location: Florida
Posts: 314
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Hi,
I have had positive high ANA on and off. My sed rate have never been high.
I have positive skin biopsy for vasculitis, positive EMG and NCS, for peripheral neuropathy, Autonomic Reflex study positive for small fibiber neuripathy by sweat study.
I have borderline Lupus Anticuagulant test.
I have all the symptoms of systemic inflamation.
Have had Prednisone with good relief
I take Cellcept now for the vasculitis, was on Methotrexate before.
I have all synptoms of Sjoegrens. I have had the blood test a few times, always negative. Lip biopsy also negative.
Doctors have told me that the blood test for sjoegrens, have a false negative 6 out of 10 times.
So, I guess, it is really frustrating to get diagnosis to fit.
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