I think Nanc hit on part of the answer, talking to a therapist. We also have each other on this site. I'm not sure how much a therapist can understand how RSD/CRPS makes us feel. I've been to one a handful of times and I was frustrated by it, but maybe I didn't stick with it long enough or find the right one.
I really think MORE AWARENESS is absolutely needed! Maybe we wouldn't feel so guilty if there was more validation out there for the harsh reality of this disease.