My name is Anna Maria, i am from the Faroe Islands in the north Atlantic ocean. I am not good at writing english, but i hope you will understand what i am writing.
The reason i join here is of my son. He is adopted from India and is now 11 years old. He is premature so for some years we and the doctors believed that was his challenge. But after years to find out what caused all his mental and physical problems, he was diagnosed with cerebellum ataxia. In his case it means that he looses his abilities. His cerebellum is shrinking, now with about 40%. There is no cure for him, the doctors say. His illness is maybe something genetic.
I lost my husband last year to cancer, so it has been a hard time for my little family. I also have an adopted girl 16 years old.
In this forum i hope to find someone in the same situation, with a child with the same disorder as my son. And to try to find out, if there is something to do, so my sons illness can be delayed or stopped. I know what he has lost he want get back.