Originally Posted by Brambledog

Thanks so much for the link Nanc

I thought this was good in terms of them actually spending some time on it, and really talking to Kathy. Yes, they could have gone deeper into the range of symptoms we can experience, but then they might have lost the human element to the story, and lost the audience's interest. Sadly, you need to get people hooked in before you can bore them with the raft of CRPS symptoms! It is a lot to take in, and tbh I think ordinary people just struggle with too much medical info.

This is just my opinion, and not intended to insult anyone but what did annoy me is the fact that throughout the whole show, the presenter only ever referred to it as RSD, never as CRPS. Kathy's pain management doc did, but it was only once. It's so important that the new name (not so new - quite a few years now!) is recognised and used more in the US. I know a lot of folk like the old name and don't see why it was changed, but there were sound reasons - they didn't just decide it for the hell of it. It is widely acknowledged that the confusion around the two names means that research often isn't picked up on and compared as much as it should be. We all need to embrace the term of CRPS and use it much more - it's the name used more and more in other countries, and the name that will be used internationally going forwards. We have to look to the future and try to find solutions for us, not keep clinging on to the past. The US is such a big player in global medicine, and are the main country still predominantly using the term RSD.

I don't mean to offend anyone, but I found this so frustrating. When I was searching for the link I couldn't find it anywhere when I used the term CRPS, only RSD, but so many countries define the condition as CRPS now... CRPS had so many names in the past, and the new name was debated, decided on and accepted by the medical profession, not by TV presenters or politicians.

I'm so glad to see it discussed as a whole body disease needing whole body treatment. What they were saying about food is so true, and I'm glad they mentioned that you do need a whole team looking after you who are in contact with each other. I think we all wish we had that! If only they would all sit down together once in a while and figure a way through for us - it would probably reduce our suffering much quicker.

Thanks again.

Bram.