I can't bathe either. I can only sit in the shower with one of those hand held showers.

I don't mind soaking my feet in Epsom Salts but I'm a bit frightened to take supplements.

The reason I have a Neuro problem is that I have a part of a chromosome missing which regulates metal balance in the body. I have too much zinc and iron (iron is in my heart and liver and causes problems) and not enough copper. I go into hospital every 5-6 weeks for 4-5 days to have intravenous copper sulphate. I also have Vitamin D deficiency (lack of copper causes white skin with no melanocytes) and chronic B12 deficiency (on monthly injections).

All this together causes bone marrow failure (also had bone marrow cancer and had chemo), joint problems, cartilage problems, bone problems (on my third vertebral fracture), disc problems, vascular problems (aneurysms) and ta da.....drum roll....death of nerve cells. So I have peripheral neuropathy, spinal cord myelopathy and cerebral degeneration. Oh and due to pneumonia (chronic infection because of bone marrow failure) I have scarred lungs, almost forgot that one except I have a chest infection at the moment.

Anyway, I'm not supposed to take any supplements without my Physicians approval. I do have my phosphate and magnesium levels checked every month though, along with all the other things like copper etc.

I'm hijacking the thread....sorry.

All I can say is I DO know how you feel syrakim and you need to get help. These things don't tend to improve by themselves. As the others have said. There are treatments available as long as you have a doctor who is willing to work with you.

Ginnie....the needles in the stomach were copper histadine, it's given to children born with Menkes Disease but because I'm an adult and I pee the copper out, I had to have huge doses.