Good Lord, you have been though some terrible issues. Sometimes words fail, when I hear how it is for some of the folks here. Is there anything they are currently doing for you that helps you to feel better? I would do the same thing, stay away from supplements, unless the OK from your doctor. They are minerals etc. that you are getting by taking them. I did for VB12 for the PN with a doctors approval. Your case is not simple. I had never heard of the kind of condition you have before. ginnie