This is a disease that can isolate you big time - often because others can't see your disability, sometimes because they are frightened of it, but - you can't let that happen.

Loneliness and separation from society will not help you in the long run, and the longer you let this manifest, the harder it will be. We all need a sense of belonging to community - whether it be large or small. This might be a family, club, a support group or a group of friends - or lots of other things. This group is amazing, but it can't satisfy the physical need of someone to hug, someone to pat you on the back if you do something great or to give you a gentle smack if you are being a goose.

Please be careful - isolation is a fast track to depression. So, please live your life as best you can (no matter how bad things are for me, there always seems to be someone that I know who has it a hundred times worse), Try and look through your pain and fear and find a positive - they are there - however deeply buried.

Good luck, and try and have a good day.