Bram is right, this is a brave topic Renee and one I am sure we have all thought of. After having this for so long, I have gotten past the fear of it killing me. I am more concerned about suffering more from it...like more internally. I have so much pain (like many of us do) in all four extremities, face and trunk, and there is no control over it. Drs can't control or treat it because I can't take much of anything. I have a headache every single day, that I am used to. I also have migraines often, allergic to all migraine meds I have tried. I do not worry about medication destroying me because I cannot tolerate anything

What also concerns me is the other conditions that I am developing as a result of RSD/CRPS. Just recently diagnosed with interstitial cystitis and pelvic floor dysfunction (have to start PT for the PFD). My quality of life sucks and what gets me through every day is my husband, so thankful for him.

Nanc