I agree Bram, I wish they could stick with one name. When I use both CRPS/RSD it seems to confuse lay people. They get a look on their face as if
"do you have both or are your Dr.s not sure which one"? And then so many letters. I realize that CRPS should be the universal name and that RSD is old school. But in a way Complex regional pain syndrome makes it sound like there is pain in one region. Then I wonder if people just think "oh, your (arm/foot) hurts so take a tylenol or an aspirin and get on with it." I just wonder if including the word "dystrophy" helps with understanding. Any thoughts?