I am so sorry to hear what you have been going through.

I have it in my left ankle...that's where it started for me...and when I experienced spread NONE of the meds that had helped keep my pain bearable in the past helped with the new pain I was experiencing. There were other factors...I don't think any case is simple...but I do know the frustration and pain that you are experiencing right now.

I also have had to deal with EXTREME sensitivity. The best thing for that was physical therapy and desensitization therapy. I still have sensitivity to touch, extreme sensitivity to cold...but at least I can wear regular clothes now. If you are doing physical therapy then it might be worth mentioning. It does hurt...ALOT...but it normalizes sensations related to touch and was, in my opinion, well worth it. Just don't let them do any sort of contrast therapy...that's bad news...but desensitization was very beneficial for me in the long run.

I also get relief from heat...if that helps you then maybe you can try heating pads or something like that. I find for me a lot of things are about finding what it worth the pain to avoid greater pain...and balancing those things out to me the best quality of life overall. It's not easy...especially during this time of the year when it is cold outside...but time, patience, trial and error, and determination will allow you to eventually find something that works for you.

We're all different and what works for one person doesn't always work for another. Everyone has to choose the path and treatment that they feel is the best for them. We're all here for support...I have learned a great deal from the people on this forum and I don't think I am exaggerating when I say that they have saved my life. I would not have achieved any of the things I have without the support and advice of the people here. Doesn't mean I agree with everyone...but I appreciate every person who posts here for sharing their opinions and experiences as they have ALL helped me make informed decisions about my own treatment and care regarding CRPS.