Right now it's quality of life that is a big deal. I fear all the time how bad I might get, and that I need to fix something in my life so that I can keep going another 40 years. Planning is hard to do with all of this, and I just want to get to a point where my body will allow me to plan without fear.

I think there is nothing wrong with wanting to die with dignity. I don't want to waste away and end up as a veggie. The only thing that has kept me going so far is my DD.