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Old 10-27-2013, 07:33 PM
Synnove Synnove is offline
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Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
Synnove Synnove is offline
Member
 
Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
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hi, I realize this an old thread, but I had something to add.

First, Ayana Dee, I hope by nowe, you have gotten answers to those night episodes.
The only thing I wanted to add: Yes, we have to be our own advocates. Sometimes, we forget to bring some one with us to doctors appt. I know, my husband does not really want to sit in, I think he feels in the way. And I am capable of speaking for my self, but sometimes I might forget. Always have it written on a paper what you want to talk to the doctor about.

But the real dilemma is, THE DOCTORS They just say something to get you out of the office I think. But now, I have made myself a rule to fallow: When you are in there with the doctor in consultation, ( and it is most likely a specialist, and if it is the first visit, they bill your insurance for up toi $ 900 for the consultation, and when it is a fallow up, the bill somewhere around $
So, 300 - 400
So when you are in there, YOU HAVE ALL THE RIGHT TO TAKE CONTROL OF THE TIME He is being paid well
So make your plan, ask the questions,
Do not let the doctor manipulate you to beleave any thing he says. If he gives you a diagnosis, ask for back up explanation, and web site to look it up.

I had something very similar to you Ayana Dee happen to me.

I tell you, it was so scary.

I woke up around 1 am or 3 am, with a feeling I could not breath, my mouth was all foamy white sputum, My body felt heavy and I had a deep warmth feeling from one area of body moving or spreading slowly all over my body, And I could feel a rush like fast vibration inside, even though I felt my pulse, and it was normal.
I went to the Mayo Clinic in Jacksonville, Florida due to multiple neurological problems, and I could get no answers from any neurologist.

So, This neurologist at the Mayo Clinic, said " it sounds like a panic attack"

So I said to her, I have never had panic attacks, I have never been seen by a psychiatrist or had anyone diagnose me with any kind of psychiatric disorder"
So, this thing with panic attack, how can any one that are sleeping , just wake up and have a panic attack??
I had driven 6 hour to come to this well known clinic hoping to get some help. I later wrote a letter to the clinic and to the doctor to have that stuff taken out of my medical records, and they did.
I do not beleave all the doctors. I have to have solid proof, and I must have good confidence in my doctor.
Now, I have persued this with my neurologist down here. I have 2 neurologists. They both think this might bee simple partial seizure.

So now, I am going next week to be admitted for 3 days and have a video sleep study and EEG monitoring.

Hope all is well with you all
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"Thanks for this!" says:
ANNagain (10-28-2013), AynaDee (11-03-2013), SallyC (10-27-2013)